5th Annual Casen's Crew for Children's Cardiomyopathy
This years event included a 5K and a 4 Man Scramble Golf Tournament all held at Maxwell Golf Course. It was another successful year raising $12,000. Children's Cardiomyopathy Foundation received a check for $10,000 and a sweet family that we had the honor of meeting, that was staying at Cook Children's Hospital because their little girl has cardiomyopathy, received a check for $2,000. After five years of doing this in honor of our sweet Casen, I am still overwhelmed at the love and support we continue to receive each year and the impact that Casen continues to have on the lives of others.
Pictures courtesy of Luke Terry, LT Photography and Design
Casen Riley 5K Run/Walk
4 Man Scramble Golf Tournament
The Hilts Family
Brin, Matt, Liam & Alyssa
This is the sweet family that we had the privilege of meeting and helping last year. It’s been over 5 years since we lost Casen and he is still doing so much for so many people and has blessed us in more ways than we ever thought possible. Being able to meet this family and share stories with them is just one of
Brin was born 10 weeks early on September 9, 2014 at Harris Methodist Hospital in Downtown Fort Worth. For the first five weeks of our NICU stay doctors told us that Brin was one of the boring babies. We just had to sit and wait for her to feed and grow and then take her home. Mid October came and doctors noticed that the PDA in her heart was not closing and that the left ventricle was enlarged. She was diagnosed with Dilated Cardiomyopathy, and over the next week Brin’s heart began to fail. She was transferred to Cook Children’s Hospital so she could be closely monitored by the cardiology unit. When we arrived at Cook’s that afternoon, Brin was placed on the strongest heart medication they had. Later that night, Brin reached the point where she needed to be placed on a ventilator. She stayed on the ventilator for almost a month as they tried various medications to improve her heart function. During this time we were approached by the Riley family. They shared Casen’s story and how his precious life led to the creation of Casen’s Crew. Words cannot describe how thankful we were to sit down and talk with a family that knew exactly what we were going through. Thanks to generous contributions made to Casen’s Crew, the Riley’s were able to present us with a gift that lifted a huge burden off of our family’s shoulders. Over the nextmonth and a half, Brin eventually grew strong enough to breathe on her own. She was discharged from the hospital just a few days before Christmas. In May, doctors performed an echocardiogram that showed Brin’s heart to be back to its normal size and function. Brin just turned one in september and she is full of smiles and energy and we are so thankful for each and every day we have with her. In December they will perform another echocardiogram. The doctors are hopeful that she will be given a clean bill of health and be taken completely off heart medication.